Q1: Has your life been touched by a Traumatic Brain Injury?
Q2: How have you been touched by a Traumatic Brain Injury? Survivor
Other (please specify) i am also a friend of several tbi survivors
Q3: Summary – the cause – the injury – today’s quality of life?
violent crime, head injury, post concussion syndrome, undiagnosed for 4 years, waking up to a new life
Q4: Please share your experience at the time you became aware of the injury?
i wasn’t sure how i knew something fundamental had irreversibly changed when so many other things still seemed to be in place. i felt denial, shame, and grief. i move among the latter two and acceptance and often appreciation and pride. everything is complicated.
Q5: Tell about the experience immediately after the injury. Surgery? Coma?
bleeding from two head wounds, scalp lacerations, sutures, taken to nearby er, tests done, sent home same night
Q6: Tell us about the hospital stay after the survivor was no longer in a coma never experienced coma
Q7: Tell us about the time in rehabilitation?
i never had inpatient rehab. i am currently participating in outpatient rehab. it is confusing. i see the benefits but it is also so limiting in terms of flexibility, creativity, and imagination. i am on the fence. transitioning to new things on the horizon.
Q8: Tell us about coming home!
i just came home from the hospital and since i didn’t know i was concussed i took an antianxiety/muscle relaxer to put me to sleep. it felt unreal even after i woke up. did it really happen? why? what was different. tried to resume life as usual. long process. many labyrinth curves and switchbacks. many beautiful mountainpeaks.
Q9: “Please type some single words that describe how TBI has touched your life. For example: Frightened, confused, sad, etc. Enter as many or as few words as you like. Separate each word with a comma”
sensitive, uncertain, new, precious, spirit, complicated, layers, growth, pain, love, radicalized, politicized, broken, built, intention, community, connective
Q10: What year did the injury happen? 2010
Q11: Tell us about life today?
today was ok. i was tired and the air outside was delightful
Q12: What do you want to tell others going through the same process? Treatments, understandings and actions that made a difference?
it is important. you are significant. use the internet or get help doing so. find people. you are human. grief. newness. precious. heart.
Q14: This information will be used to provide hope for others touched by TBI. Please indicate your permission to post your story on our blog and web site? Your name or email address will not be used with the posting.
Yes, you have permission to post my input