Has your life been touched by a Traumatic Brain Injury?
How have you been touched by a Traumatic Brain Injury?
Summary – the cause – the injury – today’s quality of life?
Difficult three day birth delivery; xray; doctor expected one child, xray showed two (twins); forceps delivery, visible bleeding from head.
Please share your experience at the time you became aware of the injury?
The birth event was hidden from me as it embarrassed my mother and my father agreed with her to keep quiet on what happened (a non-normal, three day complicated birth delivery, forceps injury delivery). I did not become aware of the injury which caused paying attention/inattention/working memory difficulties until I was in college.
Tell about the experience immediately after the injury. Surgery? Coma?
I was taken home from the hospital and my head was covered with a bonnet so the neighbors would not be aware of the forceps birth delivery trauma. My experience was not being able to view life along the lines of sustained attention. I was easily distractible with a very short attention span (both words/letters and numbers/digits); my attention span was not whole/not normal. X-ref: paying attention/inattention, processing, sustained attention, subtle working memory glitch, central auditory processing glitch, dyspraxia.
Tell us about the hospital stay after the survivor was no longer in a coma
(See above – I did not have surgery, I was not in a coma; I did experience forceps trauma/bleeding from head).
Tell us about the time in rehabilitation?
Through a series of experiences over 21 (1967) to 27 (1973) years, I became aware that my paying attention/inattention challenge responded in a positive, real way to coffee/caffeine compounds/FDA approved alertness aids (Tirend, NoDoz). I was diagnosed with Organic Brain Syndrome, Inattentive ADHD including Central Auditory Processing and Dyspraxia.
Tell us about coming home!
I tended to view life as seeing the trees (parts), not the forest (whole). Caffeine (Tirend, NoDoz – FDA approved alertness aids) allowed me to temporarily see the forest (whole) for 4 hours plus at a time.
“Please type some single words that describe how TBI has touched your life. For example: Frightened, confused, sad, etc. Enter as many or as few words as you like. Separate each word with a comma”
inattentive, distractible, unalert, memory, concentration, sequencing, continuity, initiation, visualization, thinking, cognition, perception, impairment, glitch, future, ADD, ADHD, APD, hearing, processing, communication, socialization, neurology, perplexing, baffling, mysterious, consciousness, apraxia, dyspraxia, hemiparesis
What year did the injury happen?
Tell us about life today?
Due to finding a medicine (Tirend, NoDoz) which helped aspects of my paying attention difficulties, I was able to survive; today, I am retired.
What do you want to tell others going through the same process? Treatments, understandings and actions that made a difference?
For partial answers/insights into paying attention difficulties (neurology), read: Nerves in Collision book by Walter C. Alvarez, M.D., the How To Cure Hyperactivity book (1981) about Inattentive ADHD by C. Thomas Wild, and Remarkable Medicine book by Jack Dreyfus.