Q1: Has your life been touched by a Traumatic Brain Injury?
Q2: How have you been touched by a Traumatic Brain Injury?
Family of a Survivor
Q3: Summary – the cause – the injury – today’s quality of life?
￼￼￼￼￼￼I am a single mother of three children. On September 9, 2013 at 10:22 PM, my life forever changed. My two daughters were involved in a serious accident. My youngest (13 years old) suffered DAI and multiple fractures and other brain contusions. She was given less than 1% to live, and even less to have any quality of life. They wanted to pull the plug, but I fought every step of the way. She lived and has made miraculous progress in just four months. I write a blog about it everyday, and I wrote a book about her injury and our first two months in the hospital. I signed up to follow your blog. I hope you check mine out, and I hope that you will read our story in our book, The Never Say Never Kid. We are still a work in progress and definitely not the typical survivor.
Q4: Please share your experience at the time you became aware of the injury?
I wrote a very poignant blog post on this very thing. It was the most horrific day of my life.
Q5: Tell about the experience immediately after the injury. Surgery? Coma?
She was in a coma for 40 days, and she was considered non-responsive. As they started taking her off life support, we were all gathered fully thinking that she would not live. She did. Then they said she was not purposeful and not a candidate for neuro-rehab. The next day she wrote me a note that said I love you Mom.
Q6: Tell us about the hospital stay after the survivor was no longer in a coma
She completely defied all the odds. They kept preparing me for what I would be ‘left’ with. They said she was in a vegetative state. They said a lot of things, but she is a miracle. I had to fight hard to get her into rehab, and once she did, in just weeks, she walked, talked, ate, used the bathroom and was discharged exactly 58 days after she was admitted.
Q7: Tell us about the time in rehabilitation?
She did inpatient rehab at Cooks Childrens Hospital in Fort Worth. They never expected her to do what she did. They considered me a bit ‘deer in the headlights’ kind of mommy. She relearned everything, and her memories start in rehab. She did Day Treatment Neuro Rehab at Baylor Our Children’s House. They gave me my daughter back!
Q8: Tell us about coming home!
It is a challenge. I write a blog about our daily lives. www.mistimeyers.com I also wrote a book about our hospital stay. Please check it out, and I hope you purchase a copy. We are still trying to find a way to make it in this world financially after the devastation that DAI brings.
Q9: “Please type some single words that describe how TBI has touched your life. For example: Frightened, confused, sad, etc. Enter as many or as few words as you like. Separate each word with a comma”
Devastated, saved, reborn, pain, sadness, happiness
Q10: What year did the injury happen?
Q11: Tell us about life today?
It is good, but it is hard to redefine ourselves. We live together and it is just she and I at home. We are reinventing ourselves, and life is hard to resume, especially after everything is so different. She grew six inches due to some pressure on the pituatury gland due to her extreme brain swelling. She lost 20% of her body weight when she did not eat for 40 days except through a feeding tube that she did not tolerate very well. We are very different.
Q12: What do you want to tell others going through the same process? Treatments, understandings and actions that made a difference?
Good things can come out of this. People do get better even though the experts want to prepare you for the worse. The worst is not living. The best is learning that life is valuable and learning how to live it again.