Keep the faith

21
Aug
Mediumxray

Q1: Has your life been touched by a Traumatic Brain Injury?

Yes

Q2: How have you been touched by a Traumatic Brain Injury?

Family of a Survivor

Q3: Summary – the cause – the injury – today’s quality of life?

My husband was hit from behind while sitting at a stop light. He sustained a moderate to severe head injury. We are now 12 years out and it has been EXTREMELY difficult. His quality of life today is dependent on the day and the mood he is in that day.

Q4: Please share your experience at the time you became aware of the injury?

After the accident he was treated for a hurt leg and sore neck. The doctors in the ER did not or were not worried about his brain even though they were told he was unconscious for about 5 to 8 min after the wreck. He was released after about 2 hours in the ER and came home.. In two days I noticed he could not remember where he lived or where things were located in our house, our town. or his office. Couldnt remember names or faces. I took him to another doc and he was diagnosed with a tbi.

Q5: Tell about the experience immediately after the injury. Surgery? Coma?

Oh pretty much already did that in the previous answer.

Q6: Tell us about the hospital stay after the survivor was no longer in a coma

Respondent skipped this question

Q7: Tell us about the time in rehabilitation?

He had severe head pain. Unbearable at times. We tried everything….pain management was off the charts giving him every experimental cocktail they could think of to control the pain, mood swings, anxiety, anger. It made it worse. I moved my son out of our home to live with my mom because he became so hostile. He made bad money decisions, relationship decisions, business decisions….

Q8: Tell us about coming home!

Respondent skipped this question

Q9: “Please type some single words that describe how TBI has touched your life. For example: Frightened, confused, sad, etc. Enter as many or as few words as you like. Separate each word with a comma”

Scared, anxious, confused, painful, angry, frustrated,sad, depressing, challenging.

Q10: What year did the injury happen?

2001

Q11: Tell us about life today?

My husband has been able to work, thank goodness, although it has to be on his own schedule and not alot of stress. He does not deal well with stress. He has always had a big personality and it has just gotten bigger and meaner. He does not mean to be so harsh but thats just the way it is. Any bad habit he had before has been magnified. Personality wise, sexually, not able to filter alot of things, brash, very impulsive with actions and words.

Q12: What do you want to tell others going through the same process? Treatments, understandings and actions that made a difference?

Gosh if you are just starting out…..INSIST on being checked out and document what and where the brain is affected. you will need this information down the road to compare how the brain has changed. Insist on help. Your TBI is REAL…IT WILL AFFECT EVERY area of you life as well as your families. Reach out to someone safe that you can trust to keep it real for you….There have been many times I didnt know if I(the wife) was the crazy one. I didnt have a support network as I was embarassed at the things that were happening in my perfectly normal family that was not so perfectly normal or even close to it anymore! Keep the faith as it is the only thing that is real at some points in this heartbreaking journey.


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