Don’t try to be a caregiver on your own

21
Aug
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Q1: Has your life been touched by a Traumatic Brain Injury?

Yes

Q2: How have you been touched by a Traumatic Brain Injury? Family of a Survivor

Caregiver and mother of survivor

Q3: Summary – the cause – the injury – today’s quality of life?

He had a seizure then fell and hit his head on concrete. He sustained a frontal lobe injury.

Q4: Please share your experience at the time you became aware of the injury?

Respondent skipped this question

Q5: Tell about the experience immediately after the injury. Surgery? Coma?

He had surgery the next morning. They moved his skull so his brain could swell, explaining that they would later replace it.

Q6: Tell us about the hospital stay after the survivor was no longer in a coma

He was in ICU for several days and then moved to a rehabilitation floor. He seemed grateful to have survived and was in a pleasant mood as long as he was on pain meds and the skull was out.

Q7: Tell us about the time in rehabilitation?

They rehabbed him in another hospital for only two weeks and then he came home.

Q8: Tell us about coming home!

He was glad to come home but it was not twitch out struggle and it remains to be so even two years after the incident.

Q9: “Please type some single words that describe how TBI has touched your life. For example: Frightened, confused, sad, etc. Enter as many or as few words as you like. Separate each word with a comma”

Overwhelmed, exhausted, depleted

Q10: What year did the injury happen?

2011

Q11: Tell us about life today?

It continues to be overwhelming. My son is fairly high functioning, but I cannot get him involved in participating in the programs designed for his injury. He basically feels everyone else but him needs the help.

Q12: What do you want to tell others going through the same process? Treatments, understandings and actions that made a difference?

Don’t try to be a caregiver on your own. It is not possible and it will drain the life out of you. I wish I had used the agencies available from the start because my son will not accept the help now and it puts the entire burden on me, which he does not even care about or notice.

Comments ( 1 )
  • Michelle says:

    I am in Calgary Canada dealing with similar feelings. My husband sustained a permanent severe traumatic brain injury 4 years ago in a motor vehicle accident. He came out of the coma a completely different man than when he went to work that day of the accident. I’m so tired…. Trying to raise 2 little girls on my own & care for him & work full-time feels like a burden that will never end. His injury is to his right frontal lobe & he struggles with being aggressive towards me & the girls, with impulse control – gambles full-time, even when I hide the $… I feel like I’m drowning & my family hurts for me but everyone else just thinks I’m being unloving when I’m overwhelmed. I’m always the bad guy/girl & he’s the “poir brain-injured husband”- even when he’s threatened my life in front of my daughters…. I feel like there’s no where to go- we lost everything because of the accident – our home, our jobs, everything…. Would love suggestions & someone to talk to who can understand & give me perspective. Thanks

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