Q1: Has your life been touched by a Traumatic Brain Injury?
Q2: How have you been touched by a Traumatic Brain Injury? Family of a Survivor
Caregiver and mother of survivor
Q3: Summary – the cause – the injury – today’s quality of life?
￼￼￼￼￼￼￼￼￼He had a seizure then fell and hit his head on concrete. He sustained a frontal lobe injury.
Q4: Please share your experience at the time you became aware of the injury?
Respondent skipped this question
Q5: Tell about the experience immediately after the injury. Surgery? Coma?
￼￼￼￼￼He had surgery the next morning. They moved his skull so his brain could swell, explaining that they would later replace it.
Q6: Tell us about the hospital stay after the survivor was no longer in a coma
He was in ICU for several days and then moved to a rehabilitation floor. He seemed grateful to have survived and was in a pleasant mood as long as he was on pain meds and the skull was out.
￼￼￼Q7: Tell us about the time in rehabilitation?
They rehabbed him in another hospital for only two weeks and then he came home.
Q8: Tell us about coming home!
He was glad to come home but it was not twitch out struggle and it remains to be so even two years after the incident.
Q9: “Please type some single words that describe how TBI has touched your life. For example: Frightened, confused, sad, etc. Enter as many or as few words as you like. Separate each word with a comma”
Overwhelmed, exhausted, depleted
Q10: What year did the injury happen?
Q11: Tell us about life today?
It continues to be overwhelming. My son is fairly high functioning, but I cannot get him involved in participating in the programs designed for his injury. He basically feels everyone else but him needs the help.
Q12: What do you want to tell others going through the same process? Treatments, understandings and actions that made a difference?